I was diagnosed with PTC in March, 2000. I had the Optic Nerve Sheath Fenestration done in March, 2002. Until last month, October, 2015, I haven't had any severe issues with my eyes. I was diagnosed with it as a chronic condition I'll have for life. I suffer headaches, dizziness, tinnitus, double vision, nausea, exhaustion, memory loss, speech problems and numbness in my arms/hands & legs/feet.
I wish this talked more about hearing loss as well. Very informative. Took the Dr's 8 years to diagnosed me.
I believe that due to the gastric bypass surgery already in place and not eating enough nutrients causing extremely low thiamine levels I developed "wet brain". This didn't get diagnosed because I didn't consume alcohol. This I believe is what caused my empty salla syndrome. As the excessive fluid in my brain flattened my pituitary gland permanently damaging it. Now I have to live with adrenal insufficiency and take medication the rest of my life.
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