Erica Russell is an Adult Congenital Heart Disease survivor. This is her story.

Erica Russell is an Adult Congenital Heart Disease survivor. This is her story.


My name is Erica Russell and I
am an adult congenital patient. I was born cyanotic,
which is blue baby. So my parents knew
from the get-go that I had health issues. So when I was three days old
I was brought here to UK. I’ve been at UK my entire life. Well, since I was three
days old– same thing. The environment has
always been great, it’s just the staff have
always been friendly, they’re kind of like
an extended family, for the most part, because I’ve
spent so much time with them. So it’s been recently the
new group with Dr. Leventhal and Jessica, they’re pretty
much just like close family. So you have your
related family and then you have your
medical family, which is just as important
because you have to know who to ask some questions to. That, as great as your relative
family is, they’re not doctors. So it’s always good to kind
of have that life line to call and ask that question
when you don’t understand exactly what that result meant. So having somebody
to actually talk that understands it is huge. I don’t see another surgery
in the near future, or any that I’ve been alerted to. So I’m kind of in
that point where I’m just like anybody else
walking down the street. You don’t know what’s
going to happen, so you just kind of have to
live every day to figure it out.