5 Month Old Survives Heart Attack Caused by Kawasaki Disease

5 Month Old Survives Heart Attack Caused by Kawasaki Disease


(gentle music) – [Woman] My name is Laura. And this is Brent. And this is Myles. Myles is our second child,
we have a four-year-old daughter Lucy. And Myles as born in May of 2016. Honestly he’s been such a
happy kid from the beginning. Really just very smiley all the time. And so when he started to get sick that as probably the biggest indication that something wasn’t right. It was a Sunday morning and
we went into the pediatrician and he threw up green. And, they thought that he had some sort of blocked intestine. And so they decided as
a precautionary measure to send us right to UBA. – [Brent] Once we got to UBA
and they went through the tests around the potential
they can test the issue and all this came back clear. Then it really felt like 24 hours of being on a House episode. Where the best doctors in
the country or in the world they even weren’t quite
sure what was going on. They just knew something was a little off. – They continued to do a number of tests. And then at some point decided
to do an echocardiogram and that’s when they realized
something was not right with his heart. (gentle music) – [Man] I first met Myles
when the pediatricians were concerned that his
heart wasn’t working well. Myles looked like any
other five-month-old. He honestly looked like my five-month-old, I had at the same time. And he was sitting in
Laura’s lap and looked like anybody else. Yeah, she was terrified,
dad was terrified. And we did an ultrasound
of his heart and we saw that his coronary
arteries were very large. Which really the only
thing that could be is Kawasaki’s disease. That illness had weakened
his coronary arteries and unfortunately for Myles there was no blood flow past that clot in his left coronary artery. He had clear signs that he
was having a heart attack. – I sort of went into a state of shock. I mean, I couldn’t stand up. I was physically trembling. It was sort of this like
out of body experience. In those moments, I think you you try to figure out,
what is my role as a parent right now, I feel so hopeless. – We sort of knew life one way. And then you start preparing for, really, the rest of your life to
be completely different. – You don’t even know how
you’re supposed to handle a situation like that. (gentle music) – [Peter] Kawasaki’s disease
is a inflammatory illness. A disease primarily of children. And, it really only
happens in this kind of young school age. Despite knowing about this disease for over 30 or 40 years,
we don’t know the cause. It’s very hard to diagnose. There’s no one test that
we can run that says yes or no, this is Kawasaki’s disease. And so that limits us. Not many people have heard
of Kawasaki’s disease but it’s not terribly rare. (gentle music) – [Brent] After UBA
Medical figured out it was Kawasaki’s disease they
moved us into the PQ and we were there for seven days. And then once we made the transition to sort of the regular part of the hospital, in the pediatrics, I really
started thinking about the future, at that point. – You feel like you’ve
got a handle on life and then all of a sudden
you’re in this situation and you don’t even know
what questions to ask. There are just moments
like that that you realize how much this is gonna change life. – Seeing the ultrasound,
seeing some of his lab work this was gonna be tricky. And trying not to worry them too much but we’re gonna move them over to the ICU now he needs a place where he can
be monitored a little closer. We were certainly worried that this heart muscle was going to fail. (gentle music) Fortunately Myles did very well and whether it was all the
medicines we threw at him or the good care from the ICU doctors, he weathered that storm
and has done very well now. And I think we’re kind
of out of that window of this heart’s gonna fail and it’s not gonna work very well. And now into kind of,
okay, how do we optimize his quality of life? How do we best make sure that he can run, and swim, and play with his friends and know that he’s safe doing that. – [Laura] His heart function
is essentially normal now because of what his body has
been able to do to repair and because of the
medications that he’s on that are working. (gentle music) Before all of this happened I associated the American
Heart Association with, I think an older population. You, of course, know that
there are people of all ages including children that deal
with various heart issues. But, it wasn’t really on our radar. I think it really
underscores the importance of research and support for organizations that are supporting people of all ages and all abilities before
and after their diagnosis. – [Peter] And donations to
the American Heart Association I think you can dramatically affect Myles. Organizations that can provide for figuring out what’s the
best way to take this and to support the families
around this, as well. I mean, having a way
for families to connect with other families,
having a way for parents to get information are hugely important. Not just the research
stuff, but the other kind of support aspects of it. – You never know how it’ll
impact maybe your own family. And to have that research on awareness and really important work donating and supporting the
American Heart Association benefits others, ideally. But it might one day really
impact you personally, or your family, your extended family and whatever the case might be. (gentle music)

8 Comments

  1. My Son just went through this as well! At 15months. And this was the most scariest thing I had to go through. Me and my husband can relate to the way you guys were feeling. It just happened out of the blue! More research and awareness needs to go towards this disease. Because fortunately it was caught in time….but his first doctor had know clue as to what he had! And what about the other parents, doctors who DON'T catch it in time.

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